20 Mar
Living with Down Syndrome

Living with Down Syndrome

Down syndrome is currently the most common cause of intellectual disability. It’s not an illness or disease, but a genetic condition. Many people with the syndrome grow up to live ordinary lives and be active members in the community.  

For those who need some support to do this, here are some options that new parents and families can consider. 

Supports for new parents 

If you’re pregnant you have the option to test for Down syndrome. This is available as screening tests to judge your child’s likelihood of the syndrome, or a diagnostic test for confirmation. If tests reveal Down syndrome, parents are offered a choice to continue or terminate the pregnancy.  

We understand this is a difficult decision to make, and we recommend being fully informed on the facts before choosing. Here’s a factsheet for new parents, and links to peer support groups here

Early Childhood Early Intervention (ECEI)  

Receiving the right support during the early years can make a great impact on how any child with or without disability. In particular, this assists children with Down Syndrome to foster strong relationships and key life skills. 

Children 7 years and under with a developmental delay or disability are eligible for ECEI supports through the NDIS. Once registered they will have an NDIS plan to support their needs and help them work towards their goals. To see if your child is eligible, get in contact with us today. 

Community supports 

For children and young adults from ages 7 to 17, our community supports is the new step on their development journey. Our one-on-one supports can help them access the community through recreational activities and outings. We also offer group programs like the School Holiday Program, which helps them build relationships with peers, try new experiences, and grow confidence within a safe environment.  

This then helps position them for achieving their goals as they transition into adulthood. 

Just like everyone else 

Down syndrome is not the defining factor in a person’s life. Like all of us, there are many social, cultural, and environmental factors that play a part.  

It’s important to remember that people with the syndrome are unique and different, with the same aspirations, interests, and needs as the rest of us. We should aim to treat them the same as we treat everyone else. 

For more details about our supports, contact us today via email or at 1800 610 665.